What we are about:  

For patients - Hope and Empowerment
For medical staff - Renewal and Understanding

A monthly newsletter for those dealing with a serious or chronic illness or condition including patients, caregivers, family, friends, medical professionals, and support organizations.

Issue 21

July 22, 2009

by Dave Balch,
You are getting this because you asked for it!! 
If you're not sure why, click here
 
 
Announcements:
 
1) Dave has been quoted on AARP Online
 
2) Dave has a story published in "Chicken Soup for the Soul: The Cancer Book" - available in book stores now!
 
3) The Journal of Nursing Jocularity is back!

If you like to laugh and you are a nurse, you will love the reappearance of this online magazine.  Karyn Buxman, RN, MSN / Publisher says, "The nurse who laughs, lasts." Believe us when we tell you that she is one funny lady!  Take a look here and check the subscription page for a introductory special!

4) Dave is now a member of a product advisory panel for Hallmark Cards.

5
) Dave is now a regular contributor to EmpowHer.com

Dave will be writing one or two short articles every week about coping skills - the articles are short and very quick reads.  Sign-up now and we'll let you know when new articles are posted!

6) DVD: "You Can Handle More Than You Think You Can:
Your Amazing Ability to be Brave and Strong"
 

When Dave's wife was first diagnosed with breast cancer he thought, "How are we going to get through this... this is impossible" but he is still here (and so is his wife)!
 
How did they get from "I can't do this" to "I did this?"  
 
Recorded live in front of 1,000 oncology professionals, you will be moved, inspired, and empowered by this presentation in which Dave explains the '11 L's of Caring and Coping' with stories from their journey, plenty of humor, and two moving videos that brought his audience to cheers and tears!  To see clips from the program and for more information: www.HandleMore.com
 
7) Complimentary coping guides for your patients

We now have coping guides for your patients that contain "The 11 L's of Caring and Coping." They can be ordered in packs of 50; they are complimentary... shipping too! To see one and place your order, go to www.ThePPP.org/freestuff

Note: available only if shipped directly to a clinic or support group.  If you are an individual patient or caregiver, or cannot order for a clinic or support group, ask someone who can to order the guides for you as well as all of their patients.

 

In this issue:

Article: "Protect Yourself!"

We Were Featured in The Wall Street Journal!

Humor from the trenches
Audiences and readers share their stories

This and that
Observations, musings, audio clips, stories from the road, etc.

Meanwhile, back at the ranch...
A usually-humorous glimpse into the personal life of this cancer caregiver

Past Issues

About the Caring and Coping Newsletter

Links

Our Mission

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Please forward us to everyone you know who is a patient, caregiver, survivor, or medical professional.  (Be sure they know it's from you, though; I don't want them to think I spammed 'em!)

Patients/caregivers: please tell your doctors, nurses, family, and friends about us!

Medical professionals: please tell your patients and colleagues about us!


 

Article:  "Protect Yourself!"

I’m going to tell you one of the best things that can come out of a serious illness. I’m also going to tell you one of the worst things that can come out of a serious illness. Guess what? They’re both the same: friends and family that want to help.

The good part is finding out who is willing to step up to the plate and help. Usually a situation like that brings out the best in people, and they offer to do whatever it takes to help. We had friends who offered to come and clean our house!

We also had neighbors who volunteered to come over to pick up the horse manure. It is truly heartwarming to see how people jump in to help and volunteer their time to do whatever you want them to.

The other side of the coin, however, is this: people that BEG you for something to do, putting pressure on you to find something for THEM to do so THEY will feel better. In the midst of dealing with a serious illness, that’s the last thing you need.

I’m going to take that back… the last thing you need, actually, is to deal with people who won’t take “no” for an answer because they either a), think they know what’s best for you or b), NEED to help for their own peace of mind..

Here’s what I say: protect yourself from well-meaning but stress-producing people who create stress when trying to relieve it. The ONLY thing that matters is what YOU need and want. Period. It doesn’t matter if others disagree with you, because you know yourself and your situation best. An offer to do something that would thrill one person may completely put-off someone else. Cleaning our house was a very generous offer and I’m sure that some people would jump at the opportunity, but for it wasn’t for us. We already have a cleaning crew that we’ve been working with for 15 years and, besides, we don’t want our friends going through all of our stuff!

But sometimes it’s hard to say no because you don’t want to disappoint people and you don’t want to appear ungrateful. Example: an offer to clean your house. If you say yes, though, you will suffer the stress of having help you don’t want. Protect yourself! Thank them for the offer and then suggest something else that they can do instead; something that you DO want them to do. If they decide that their original offer is really what you need, even if you say you don’t, then stand your ground. Never accept help that you don’t want!

Other times it’s hard to say yes because you are concerned that if they do what they offered to do they will regret offering it in the first place. Example: the people who offered to help by picking up the horse manure. Here’s the lesson: it’s not your job to protect people from offering to do something they don’t really want to do. And it’s not your responsibility if they END UP doing something they don’t really want to do. If they offer to pick up the horse manure and I say yes and they hate it… not my problem!

Before I go, I’d like to make a distinction between what we need and what we want. There may be things we need but that we don’t want: the stress comes in when people do things for you that you don’t want them to do, regardless of whether you truly need it or not. Just because you need something does not mean that you are required to want it, so don’t let anyone tell you what you need as if it were something that you also should want.

The opposite is also true: sometimes you want things you don’t truly “need.” Says who?? If you want something you want it, and that’s all that matters. Example: a meal from your favorite restaurant. It would be a nice treat but you don’t truly need it because you have other food in the house. Don’t let anyone poo-poo something just because THEY don’t think it necessary.

We are all brought up to believe that it is wrong to be the center of attention and that “life isn’t about you.” I say that when you are dealing with a difficult life challenge, it IS about you and you should ask for what you want and refuse what you don’t.

The bottom line is this: protect yourself from well-meaning people. Do accept and say yes when you want what they offer, and say no when you don’t. Nobody knows what you want better than you do, and if they don’t understand that then it has to be their problem, not yours.
 

© 2009, Dave Balch  ALL RIGHTS RESERVED
 

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Humor from the trenches
...from audiences, readers, and me!

From Bruce Johnston, Miramar, Fl

One day on the radiation table for my IMRT radiation for Bile Duct Cancer I placed a coffee cup on my stomach as the technicians were leaving the room to their consoles. They asked from the other room what I was doing. I just said, "I thought I'd warm up my coffee during the treatment."

Send me your own humorous anecdotes!
 

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This and that

I speak at various events around the country and each is different and unique in its own way.  I have participated in events at outdoor barbeques, clinic waiting rooms, chemotherapy rooms (they moved all the chairs and equipment out!), restaurants, museums, etc.

Last month in Sioux Falls, SD was a new one: the event was held in a large concert hall, complete with private boxes along the walls, a balcony, etc.  A luncheon for 300 was held on the stage, and during the presentation my view (beyond the participants sitting at tables on the stage) was the same as that of a concert musician.  Very cool!

Carnegie Hall, here I come!! (Maybe not...)

 

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Meanwhile, back at the ranch...
A glimpse into the life of this caregiver
Click here to see the "cast of characters"


Coyotes are crafty creatures.  We were walking the dogs and we saw one, limping noticeably... until one of our dogs started chasing it.  Suddenly it wasn't lame at all and lead our dog into an ambush where several of his pack were waiting.  Fortunately, our dog gave up the chase when we started calling her, but just think of how this story could have ended...

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Links

Information about Dave's speaking programs, including demo videos

Dave's speaking schedule

Sign-up to be notified when Dave will be speaking in your area

No-cost services of The Patient/Partner Project

Use our articles in your printed or electronic publications

Book: Cancer for Two: An Inspiring True Story for Cancer Patients and Their Partners

DVD: You Can Handle More Than You Think You Can: Your Amazing Ability to be Brave and Strong

Let us notify you when new coping articles are posted on EmpowHer.com

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Our Mission:

Our mission is to reduce stress and restore hope for those dealing with a serious or chronic illness or condition including patients, caregivers, family, friends, medical professionals, and support organizations.

We do this by sharing our unique perspective in order to:

  • bring a new sense of empowerment to patients and caregivers

  • bring a new level of understanding and renewed sense of purpose to their entire support system of medical professionals, friends, family, and support organizations.

  • Oh... and by laughing, too! 

Caring and Coping is a no-cost component of The Patient/Partner Project
.

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Why am I getting this newsletter?
  • you requested it (at one of Dave's speaking engagements or at our website)
  • you have a business or other relationship with Dave or The Patient/Partner Project
  • I asked you and you said "Yes"
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