What we are about:  

For patients - Hope and Empowerment
For medical staff - Renewal and Understanding

A monthly newsletter for those dealing with a serious or chronic illness or condition including patients, caregivers, family, friends, medical professionals, and support organizations.

Issue 19

May 22, 2009

by Dave Balch,
You are getting this because you asked for it!! 
If you're not sure why, click here
 
 
Announcements:
 
1) Dave has been quoted on AARP Online
 
2) Dave has a story published in "Chicken Soup for the Soul: The Cancer Book" - available in book stores now!
 
3) The Journal of Nursing Jocularity is back!

If you like to laugh and you are a nurse, you will love the reappearance of this online magazine.  Karyn Buxman, RN, MSN / Publisher says, "The nurse who laughs, lasts." Believe us when we tell you that she is one funny lady!  Take a look here and check the subscription page for a introductory special!

4) Dave is now a regular contributor to EmpowHer.com
 

Dave will be writing one or two short articles every week about coping skills - the articles are short and very quick reads.  Sign-up now and we'll let you know when new articles are posted!

 

5) DVD: "You Can Handle More Than You Think You Can:
Your Amazing Ability to be Brave and Strong"
 

When Dave's wife was first diagnosed with breast cancer he thought, "How are we going to get through this... this is impossible" but he is still here (and so is his wife)!
 
How did they get from "I can't do this" to "I did this?"  
 
Recorded live in front of 1,000 oncology professionals, you will be moved, inspired, and empowered by this presentation in which Dave explains the '11 L's of Caring and Coping' with stories from their journey, plenty of humor, and two moving videos that brought his audience to cheers and tears!  To see clips from the program and for more information: www.HandleMore.com
 
6) Complimentary coping guides for your patients

We now have coping guides for your patients that contain "The 11 L's of Caring and Coping." They can be ordered in packs of 50; they are complimentary... shipping too! To see one and place your order, go to www.ThePPP.org/freestuff

Note: available only if shipped directly to a clinic or support group.  If you are an individual patient or caregiver, or cannot order for a clinic or support group, ask someone who can to order the guides for you as well as all of their patients.

 

In this issue:

Article: "Ya Gotta Ask!"

We Were Featured in The Wall Street Journal!

Humor from the trenches
Audiences and readers share their stories

This and that
Observations, musings, audio clips, stories from the road, etc.

Meanwhile, back at the ranch...
A usually-humorous glimpse into the personal life of this cancer caregiver

Past Issues

About the Caring and Coping Newsletter

Links

Our Mission

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Please forward us to everyone you know who is a patient, caregiver, survivor, or medical professional.  (Be sure they know it's from you, though; I don't want them to think I spammed 'em!)

Patients/caregivers: please tell your doctors, nurses, family, and friends about us!

Medical professionals: please tell your patients and colleagues about us!


 

Article:  "Ya Gotta Ask!"

The e-mail came just yesterday.  A friend had a friend that had been trying for 20 years (that’s not a typo… twenty years!) to get Permanent Residency status but, due to INS paperwork snafus and red tape, had been frustrated in his efforts.  The issue was not whether he qualified; the issue was the paperwork.

Can you imagine being that frustrated for that long?  Neither could my friend, so she sent an email to everyone in her address book asking if anyone knew anyone that could help.  It sounds pretty unlikely, doesn’t it?  You’d think there would be a better chance of winning the lottery than fixing a government paperwork problem with an e-mail shot out into the universe!  Why bother even asking?

Guess what?  A member of my motorcycle club works for the INS, in the same office where the problem has been!  What are the odds??  I called him and then passed his number to her.

There is a very important lesson in all of this, and here it is:  if you want something, no matter how unlikely it may seem, ya gotta ask!  My friend could have easily thought that it was ridiculous to send out such a message because of the overwhelming odds against getting results.  But she did it anyway.  Ya gotta ask!

How does this affect you in dealing with your or your loved-one’s illness?  Here is an example.  Chris was scheduled for a 2:00pm surgery and we were told that she couldn’t eat or drink anything after midnight.  It’s standard; they tell all their patients that regardless of the actual time the surgery is scheduled. 

That’s a big problem for Chris, as she tends to get low blood sugar if she doesn’t eat, which causes her to become faint or even to actually faint!  14 hours was waaaaaaay too long for her.  Enter Dave (that’s me) who is very protective of my patient (aren’t we all?) and I said that that wouldn’t work.  I reasoned that ALL surgical patients are told not to eat after midnight, so that means that if her surgery had been scheduled for 8:00am she would have been without food for 8 hours.  If an 8:00am surgery required 8 hours of fasting, then a 2:00pm surgery should also require 8 hours of fasting which meant that she actually had until 6:00am to eat rather than midnight.

I asked the nurse and she said, “No.  That’s what the instructions say and we can’t deviate from the instructions.”

I pressed on.  “What if the doctor says it’s okay?”

“Well, then I suppose it would be okay.”

“Let’s ask the doctor.”

What do you think the doctor said?  “She only needs to fast 8 hours, so as long as she doesn’t eat after 6:00am she’ll be okay.”

Ya gotta ask!

Why don’t we ask these things?  Here are some reasons: assumption (we think we already know the answer), fear of appearing foolish or stupid, fear of rejection, and we just don’t think to ask!

What can we do about this?  First we have to adopt a new way of thinking, and then we have to get into the habit of thinking that way.

Let me introduce you to “Dave’s Rule of Wrong”.  Simple yet powerful, you can use this tool to determine whether asking is a good idea.  Ironically, the “Rule of Wrong” involves asking yourself a question!  “Which would be better?  To ‘ask’ and be wrong or to ‘not ask’ and be wrong?”

Which would have been better?  For my friend to ask for help for her friend and been wrong (not gotten any help), or to not ask for the help and been wrong (in this case, someone did know someone that could help; had she not asked, she would have been wrong because of the missed opportunity)?  It’s pretty clear that there is no harm in asking and getting no results, but harm in not asking and missing an opportunity.

Got the idea?

Sorry… I had to ask!
 

© 2009, Dave Balch  ALL RIGHTS RESERVED
 

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Humor from the trenches
...from audiences, readers, and me!

From Bruce Johnston, Miramar, Fl

While undergoing IMRT radiation therapy for my Bile Duct Cancer, I would report in to the reception desk, "I'm here for the BBQ!", or, "I'll take tanning booth #2". The nurses then always called me "Mr. BBQ".

Send me your own humorous anecdotes!
 

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This and that

I was recently contacted by Jonny Imerman, who started a service called "Imerman Angels."  Their mission in life is to match people with cancer to others, one-on-one, who have had the same type of cancer.  Here is the way they describe their service:

"Imerman Angels partners a person fighting cancer with someone who has beaten the same type of cancer. One-on-one relationships give a fighter the chance to ask personal questions and get support from someone who is uniquely familiar with their experience. The service is absolutely fr*ee and helps anyone touched by any type of cancer, at any cancer stage level, at any age, living anywhere in the world."

Contact them if you’re a cancer fighter, survivor, or caregiver!  Call toll-free 1-877-274-5529 or visit their website www.ImermanAngels.org

 

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Meanwhile, back at the ranch...
A glimpse into the life of this caregiver
Click here to see the "cast of characters"


Lily brought her first lizard of the year into the house.  We know because we found its tail on the bathroom floor.  Only its tail. Lily was showing a lot of interest in the pocket door, so Chris got on the floor and discovered the rest of the lizard had crawled in there for safety.

 

How were we going to get it out of there and back into the garden with Lily constantly on guard?

Chris came up with the brilliant idea to lock Lily out of the bathroom until the lizard was brave enough to come out; then we could, theoretically, catch him and put him back in the garden.  This involved moving the cat box, stuffing a towel under the door so the lizard would stay in the bathroom, etc.  It "only" took two days; now he is safely back with his family.
 

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Links

Information about Dave's speaking programs, including demo videos

Dave's speaking schedule

Sign-up to be notified when Dave will be speaking in your area

No-cost services of The Patient/Partner Project

Use our articles in your printed or electronic publications

Book: Cancer for Two: An Inspiring True Story for Cancer Patients and Their Partners

DVD: You Can Handle More Than You Think You Can: Your Amazing Ability to be Brave and Strong

Let us notify you when new coping articles are posted on EmpowHer.com

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Our Mission:

Our mission is to reduce stress and restore hope for those dealing with a serious or chronic illness or condition including patients, caregivers, family, friends, medical professionals, and support organizations.

We do this by sharing our unique perspective in order to:

  • bring a new sense of empowerment to patients and caregivers

  • bring a new level of understanding and renewed sense of purpose to their entire support system of medical professionals, friends, family, and support organizations.

  • Oh... and by laughing, too! 

Caring and Coping is a no-cost component of The Patient/Partner Project
.

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Why am I getting this newsletter?
  • you requested it (at one of Dave's speaking engagements or at our website)
  • you have a business or other relationship with Dave or The Patient/Partner Project
  • I asked you and you said "Yes"
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