What we are about:  

For patients - Hope and Empowerment
For medical staff - Renewal and Understanding

A monthly newsletter for those dealing with a serious or chronic illness or condition including patients, caregivers, family, friends, medical professionals, and support organizations.

Issue 15

January 22, 2009

by Dave Balch,
You are getting this because you asked for it!! 
If you're not sure why, click here
 
Announcements:

 

1) Dave is now a regular contributor to EmpowHer.com
 
Dave will be writing one or two short articles every week about coping skills - the articles are short and very quick reads.  Sign-up now and we'll let you know when new articles are posted!

 

2) DVD: "You Can Handle More Than You Think You Can:
Your Amazing Ability to be Brave and Strong"
 

When Dave's wife was first diagnosed with breast cancer he thought, "How are we going to get through this... this is impossible" but he is still here (and so is his wife)!
 
How did they get from "I can't do this" to "I did this?"  
 
Recorded live in front of 1,000 oncology professionals, you will be moved, inspired, and empowered by this presentation in which Dave explains the '11 L's of Caring and Coping' with stories from their journey, plenty of humor, and two moving videos that brought his audience to cheers and tears!  To see clips from the program and for more information: www.HandleMore.com
 
3) Complimentary coping guides for your patients

We now have coping guides for your patients that contain "The 11 L's of Caring and Coping." They can be ordered in packs of 50; they are complimentary... shipping too! To see one and place your order, go to www.ThePPP.org/freestuff

Note: available only if shipped directly to a clinic or support group.  If you are an individual patient or caregiver, or cannot order for a clinic or support group, ask someone who can to order the guides for you as well as all of their patients.

 

In this issue:

Article: "Sometimes the Best Thing is Nothing"

We Were Featured in The Wall Street Journal!

Humor from the trenches
Audiences and readers share their stories

This and that
Observations, musings, audio clips, stories from the road, etc.

Meanwhile, back at the ranch...
A usually-humorous glimpse into the personal life of this cancer caregiver

Past Issues

About the Caring and Coping Newsletter

Links

Our Mission

Subscribe/unsubscribe

Please forward us to everyone you know who is a patient, caregiver, survivor, or medical professional.  (Be sure they know it's from you, though; I don't want them to think I spammed 'em!)

Patients/caregivers: please tell your doctors, nurses, family, and friends about us!

Medical professionals: please tell your patients and colleagues about us!


 

Article:  "Sometimes the Best Thing is Nothing"

When my wife had her lumpectomy the results were not what we had hoped.  The surgeon could not get all of the tumor, which meant that she was going to have to have a mastectomy.

At her post-surgical doctor visit Chris asked the question, “Am I going to die? Is this going to kill me? If so, how long do I have?”

My fantasy was that he would say something like, “Don’t be silly! Your case isn’t serious and I’m sure you’ll be fine.”

He didn’t.

He got very serious and I could tell that he felt like he was on the spot, which he was.

 “The five-year survival rate for someone in your situation is about 50 to 60 percent,” he told her. I could tell he didn’t want to say it, and he sort of choked it out.

Chris went pale. “You mean I only have about a 50-50 chance of living for five years??” she asked him incredulously, her jaw dropping in disbelief.

He told us that with her type of cancer and the stage that she was in and the fact that it had spread to the lymph system, studies show that survival rate.

(As it turns out we discovered that “5-year survival rates” are misleading because those who have survived 5 years or longer were treated with 5-year-old (or older) technology.  During their survival period the technology has improved, resulting in even longer survival rates for those treated with that new technology.  With that in mind, during the second opinion we were told that her survival chances were more like 70% - 80%.)

On the way home, Chris was sleeping in the back of the car as she often did. We were driving along in the carpool lane and I heard Chris start to cry. Softly at first, it was the first (and only) time that I heard her cry about her illness. In a heart-wrenching tone that I had never before heard come out of her, she choked out the words, “I don’t want to die. Why is this happening to me?” and continued to sob.

It absolutely broke my heart.  I couldn’t hold or comfort her; I couldn’t even touch her because she was in the back seat.  My eyes teared-up and I had to concentrate on driving, but I knew that I had to say something. 

Or did I? 

Everything that I considered saying seemed hollow, empty, or just plain stupid.  I was dying inside, not only at hearing her so distressed, but also at the thought that she might die.

What could I possibly say? I couldn’t tell her not to cry; who am I to tell her not to cry or not to feel the way she did? She needed to cry. I couldn’t tell her it would be okay, because I didn’t know that and she knew that I didn’t know that. I always feel that when something is wrong it is my responsibility to fix it; it’s just a knee-jerk reaction that I have in many situations. I knew that I couldn’t fix this, so I didn’t say anything and just listened to her cry. It was one of the hardest things I’ve ever done, but I’m convinced it was the best thing I could have done under the circumstances.

Sometimes the best thing you can do to help is to do nothing at all.

It seemed like she was crying for an eternity even though it was really only a few minutes; I will never forget those few minutes as long as I live.

© 2009, Dave Balch  ALL RIGHTS RESERVED
 

back to top


 

Humor from the trenches
...from audiences, readers, and me!

Chris has an infusion every 8 weeks.  When we walked into the chemo room I noticed a man and woman who were obviously together, each fully reclined in their own chemo chair, each covered in identical blankets, and each sound asleep. 

They were almost a perfect mirror image of each other, so much so that I couldn't tell which was the patient!  I had to look to see which of them was at the business end of the IV tubes!  (It was the man...)

Send me your own humorous anecdotes!
 

back to top 


 

This and that

Several months ago I visited the Zangmeister Clinic in Columbus.  At the time, I mentioned several things of interest and here are a few more.

The environment was both high tech and very soothing; walls and furnishings in earth tones, plants everywhere, fountains with running water, and even a number of tropical fish tanks.

There were flat screen displays strategically located with items of interest including news and upcoming programs; the screens reminded me of those used at airports for flight schedules.  Even though it was high-tech, it blended in perfectly with the soothing elements that I mentioned to make a wonderful environment.
 

back to top


 

Meanwhile, back at the ranch...
A glimpse into the life of this caregiver
Click here to see the "cast of characters"

We have no mail delivery in our area so we have to have a PO Box and go to the post office to get our mail.  Naturally, the dogs love to go anywhere in the car and the post office is no exception. When we get there Emma, one of our poodles, gets very excited because she knows that she gets to go in with us to "help" get the mail.

The ritual goes like this: we get out of the car and she is poised to jump out of the car as soon as we call her name.  We call her name and she comes bounding out of car and goes in with us.

I recently stopped at the post office, got out of the car, and called her name.  She didn't budge.  I called again, louder.  Still nothing.  I couldn't figure out why she wouldn't come with all of her normal enthusiasm.

Then it hit me:  I was calling the OTHER poodle's name instead of Emma's!  When I called, "Emma" she shot out of the car like a rocket!
 

back to top


 

Links

Information about Dave's speaking programs, including demo videos

Dave's speaking schedule

Sign-up to be notified when Dave will be speaking in your area

No-cost services of The Patient/Partner Project

Use our articles in your printed or electronic publications

Book: Cancer for Two: An Inspiring True Story for Cancer Patients and Their Partners

DVD: You Can Handle More Than You Think You Can: Your Amazing Ability to be Brave and Strong

Let us notify you when new coping articles are posted on EmpowHer.com

back to top


 

Our Mission:

Our mission is to reduce stress and restore hope for those dealing with a serious or chronic illness or condition including patients, caregivers, family, friends, medical professionals, and support organizations.

We do this by sharing our unique perspective in order to:

  • bring a new sense of empowerment to patients and caregivers

  • bring a new level of understanding and renewed sense of purpose to their entire support system of medical professionals, friends, family, and support organizations.

  • Oh... and by laughing, too! 

Caring and Coping is a no-cost component of The Patient/Partner Project
.

back to top


 

Why am I getting this newsletter?

  • you requested it (at one of Dave's speaking engagements or at our website)
  • you have a business or other relationship with Dave or The Patient/Partner Project
  • I asked you and you said "Yes"
  • it was forwarded to you by a well-meaning friend or associate (if this is the case, please subscribe now - what a shame if you missed any issues!)
To cancel your subscription, please use the unsubscribe link at the bottom of this message. 

Your information is safe: we never share subscriber information with anyone.  Ever.  Period.
 

back to top
 

 

The Patient/Partner Project
P.O. Box 824 - Twin Peaks, CA - 92391
800-366-2347 or 909-337-3928
The Patient/Partner Project is a service of A Few Good People, Inc.

(c) 2009  A Few Good People, Inc.   ALL RIGHTS RESERVED