What we are about:  

For patients - Hope and Empowerment
For medical staff - Renewal and Understanding

A monthly newsletter for those dealing with a serious or chronic illness or condition including patients, caregivers, family, friends, medical professionals, and support organizations.

Issue 14

December 22, 2008

by Dave Balch,
You are getting this because you asked for it!! 
If you're not sure why, click here
 
Announcements:
 
New DVD: "You Can Handle More Than You Think You Can: Your Amazing Ability to be Brave and Strong"
 
When Dave's wife was first diagnosed with breast cancer he thought, "How are we going to get through this... this is impossible" but he is still here (and so is his wife)!  How did they get from "I can't do this" to "I did this?"  
 
Recorded live in front of 1,000 oncology professionals, you will be moved, inspired, and empowered by this presentation in which Dave explains the '11 L's of Caring and Coping' with stories from their journey, plenty of humor, and two moving videos that brought his audience to cheers and tears!  To see clips from the program and for more information: www.HandleMore.com

Complimentary coping guides for your patients

We now have coping guides for your patients that contain "The 11 L's of Caring and Coping." They can be ordered in packs of 50; they are complimentary... shipping too! To see one and place your order, go to www.ThePPP.org/freestuff

Note: available only if shipped directly to a clinic or support group.  If you are an individual patient or caregiver, or cannot order for a clinic or support group, ask someone who can to order the guides for you as well as all of their patients.

 

In this issue:

Article: "Caregiving Defined in Two Words"

We Were Featured in The Wall Street Journal!

Humor from the trenches
Audiences and readers share their stories

This and that
Observations, musings, audio clips, stories from the road, etc.

Meanwhile, back at the ranch...
A usually-humorous glimpse into the personal life of this cancer caregiver

Past Issues

About the Caring and Coping Newsletter

Links

Our Mission

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Please forward us to everyone you know who is a patient, caregiver, survivor, or medical professional.  (Be sure they know it's from you, though; I don't want them to think I spammed 'em!)

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Medical professionals: please tell your patients and colleagues about us!
 


 

Article:  "Caregiving Defined in Two Words"

It doesn’t matter what you’re doing, whether it’s clearing snow from the porch or running a marathon, it is always a good idea to know the primary, overriding objective of the task.  Why?  Because keeping the main objective in mind may alter the way you actually perform the task.  Are you trying to make the porch look nice or are you trying to keep the snow from tracking into the house on people’s shoes?  Are you running the marathon to improve your health or to win? 

“What difference does it make?” you ask.  Maybe a huge difference, maybe not.  If you are merely trying to keep snow from tracking into the house, simply clearing the walking path to the door may be enough. Why go to all the extra work of clearing the entire porch when it isn’t necessary to achieve the objective?  If you are running simply to improve your health, you don’t have to run as fast; in fact slower may actually be better!

The same is true of caregiving.  We caregivers have way too much to do, and way too much stress and pressure to do it all.  What is it all about, anyway?  How can we take off a little of the pressure?  How can we make our jobs a little easier?  When you boil it down to the very basics, the single most important task of caregiving in my opinion, in fact its very definition, is to “reduce stress” on the patient.  Period.  Everything we do should be based around that simple concept.  I try to keep that in mind every day, and it helps guide my thinking and my activities.

Here’s the tricky part: every patient is different, so reducing stress may be different for your patient than mine.  I wanted to do all the scheduling and driving in order to make it easier for my wife, and she loved the fact that she didn’t have to worry about it!  I was reducing her stress, so I was doing my job. 

On the other side of the issue, I recently spoke to a man whose wife was going through breast cancer treatment and she wanted to do everything herself; she didn’t even want him to go with her to treatments or appointments.  If he had insisted on doing it all and going with her as I did with my wife, that would have INCREASED her stress rather than reduced it.

The second point, then, is to concentrate on things that actually stress your patient rather than the things that you THINK stress your patient or that SHOULD stress your patient.  This is about them, not about you.

Some people find it very stressful to talk about their situation with others and to hear the inevitable comments such as “I’m so sorry” or “What can I do to help” or “Here’s what happened to my friend….”  or “I knew someone that was in your situation and they died.”  (Really, people say things like that!)  Others find it comforting to talk about it and the more they talk the better they feel.  What should you do; should you take over the responsibility to communicate with family and friends or let your patient do it?  The answer is, “It depends.”  If your patient finds it stressful then you should do it, end of discussion.  What if YOU find it stressful?  Do it anyway. 

This brings up point number three: sometimes you’ve got to do things you don’t like to do in the name of reducing stress on your patient.  Do them anyway, because when all is said and done you will feel a sense of pride and accomplishment and, more importantly, you will have succeeded in reducing your patient’s stress.

We do have to take care of ourselves, though, so taking on a task that is TOO stressful could be difficult to bear considering all of our other responsibilities.  There is an option: find another way to do it by either changing your method or finding help.

Point number four, then, is that taking responsibility for tasks that are stressful on your patient is different than actually doing them yourself.  If you need or want help, get it.  If you find an alternative way of doing something that makes it less stressful for YOU, do it that way.  Remember the primary objective: reduce stress on your patient.  That doesn’t necessarily mean doing everything yourself, but rather finding a way to get stressful things done so that your patient doesn’t have to do them.

This is the power of keeping the ultimate objective in mind – it can change the way you think about things and how you go about doing them. 

© 2008, Dave Balch  ALL RIGHTS RESERVED
 

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Humor from the trenches
...from audiences, readers, and me!

I recently heard about a woman who recorded the sound of sizzling bacon. When her chemo started, she played the recording as if the chemo was making that sound as it was working its way through her body!

Send me your own humorous anecdotes!
 

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This and that

I didn't know too much about art therapy, but have always wondered about it.  During a recent tour of the North Coast Cancer Center in Sandusky, Ohio I was told a story about how art therapy helped one couple cope.

This couple was dealing with a number of family tragedies occurring at the same time so they were under tremendous stress.  They each drew a picture and were then asked to explain what the drawing meant to them.  They had not discussed it in advance and their drawings looked completely different, but there was a remarkable similarity in the symbolism each of them used to express their feelings about the situation.

The net result was that they discovered how similar they felt, which enabled them to collaborate in new and meaningful ways to cope with their challenges.

You don't have to be artistic - it isn't about beauty or perfection, but rather expressing yourself.  Maybe it would work for you.
 

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Meanwhile, back at the ranch...
A glimpse into the life of this caregiver
Click here to see the "cast of characters"

You just never know what's going to happen around here.  I returned home from a recent speaking trip at about 2:00 in the morning.  There was 18 inches of fresh snow on the ground and it was very cold. None of the snow had been removed, so it was everywhere in great quantities.

Chris (my wife) was very glad to see me (although very sleepy), then made her way into the bathroom where she discovered a dead gopher lying on the carpet.  There was no blood or trauma to the little guy, and we had no clue as to how he got in the house.  But there he was.

I put him outside as an early Christmas treat for the ravens... they like that sort of thing.
 

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Links

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Dave's speaking schedule

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No-cost services of The Patient/Partner Project

Use our articles in your printed or electronic publications

Book: Cancer for Two: An Inspiring True Story for Cancer Patients and Their Partners

DVD: You Can Handle More Than You Think You Can: Your Amazing Ability to be Brave and Strong

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Our Mission:

Our mission is to reduce stress and restore hope for those dealing with a serious or chronic illness or condition including patients, caregivers, family, friends, medical professionals, and support organizations.

We do this by sharing our unique perspective in order to:

  • bring a new sense of empowerment to patients and caregivers

  • bring a new level of understanding and renewed sense of purpose to their entire support system of medical professionals, friends, family, and support organizations.

  • Oh... and by laughing, too! 

Caring and Coping is a no-cost component of The Patient/Partner Project
.

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  • you requested it (at one of Dave's speaking engagements or at our website)
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