What we do:

For patients:

  Empowerment.
Hope.

For the medical community:

  Renewal.
Understanding.

A monthly newsletter for cancer patients and those that support them, including
caregivers, family, friends, medical professionals, and support organizations.

Issue 11

September 22, 2008

by Dave Balch,
author, Cancer for Two

You are getting this because you asked for it!!  If you're not sure why, click here

Announcement: See my article in the May/June issue of Coping with Cancer Magazine, page 14!

Article: "It's the Caregiver's Job"... Or Is It?

We Were Featured in The Wall Street Journal!

Cancer humor from the trenches
Audiences and readers share their stories

This and that
Observations, musings, audio clips, stories from the road, etc.

Meanwhile, back at the ranch...
A usually-humorous glimpse into the personal life of this cancer caregiver

Past Issues

About the Caring and Coping Newsletter

Links

Our Mission

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Article:  "It's the Caregiver's Job... Or Is It?"

During a recent program in Utah, I was talking about (as I do in every time I speak) how difficult it was for me when people would beg me for something to do to help. (The following is transcribed from the recording of the event.)

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I said, “These well-intentioned people were making it MY responsibility to find something for THEM to do so THEY would feel better.  I had so much to do I really didn’t need or want any additional responsibilities.”

At this point, a woman raised her hand and said, “they really DO want to help and they really need to be able to help and our basic philosophy of Christian life is to help, so it would be nice if you would make a list of the things that you want done around the house, pulling weeds, or something because [slapping the table on each word for emphasis] THEY NEED TO HELP.”

“I think it’s wonderful that they want to help,” I told her, “but when they beg and plead it puts a lot of pressure on me.”

She said, “So, that’s your job! Everybody does what they can do for their own selves but for the rest of us, well, give us something to do.”

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And herein lies the problem. This woman’s intentions are wonderful and loving so it’s hard to find fault with them, but the discussion became about what SHE (and her friends) needed rather than what I needed.  Maybe that sounds selfish.  Maybe it IS selfish, but why would she want to help if it was stressful for me?  That isn’t helpful.

She says it is my job to give people things to do.  I disagree.  It is NOT my job to fulfill the needs of well-meaning people.  As I see it, my job is to minimize the stress we are under.  If accepting help causes stress, then I’m going to “do my job” and say “no thank you.”

When people are going through a serious life challenge, they and they alone should be the ones who decide what they need and what they don’t need.  If people really want to be helpful, they will respect our decisions even if they think they know better or would handle it differently if it were them.  In our case, I was too overwhelmed and under too much stress to deal with well-intentioned people who wanted to help. For me, it was easier to either do things myself or let them go than to have someone else do them.

For example, suppose someone offered to mow my lawn and I accepted.  While they’re out there working maybe I’m inside helping my wife, feeling guilty that they are out there all alone.  For one thing, I am concerned that they do the work the way I want it done. Also, I feel pressure to go out there to talk to them or bring them something to drink, but I don’t want to spend my limited energy that way. 

I shouldn’t feel that way, you say?  Maybe, BUT I DO and that is for ME to determine.

I’m not saying that everyone should feel like I do.  Some people love to have lots of people around all the time and for them I say, “Go for it!”  Accept all the help and have everyone over to do things for you.  What I’m saying is that each person/couple must make their own preferences known and their friends and family should respect those preferences.

As we are growing up we are told that “life is not always about you, you cannot always be the center of attention” and so on.  I agree with that, except during a life crisis like serious illness.  Now it IS about me (us), and I need to get out of my “people-pleasing” mode and protect myself from well-meaning people that make things harder as they try to make things easier.

The bottom line: don’t accept help that you don’t want.  Period.  Politely decline the offer, and thank them for their thoughtfulness. Stand your ground, because whether or not to accept help is your decision and yours alone. 

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Cancer humor from the trenches
...from audiences, readers, and me!

Following a program in San Diego, a woman told me that when she first returned to work after having her head shaved for chemo, she broke the tension and everyone's uneasiness by having them all sign her scalp with a special pen!

Send me your own humorous anecdotes!

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This and that

After speaking to a group of nurses this comment was on one of my feedback forms:

"We all get so bogged down in daily routines and paperwork that we forget why we got into this work in the first place.  This glimpse into what the patients are up against is just what I needed to snap back to the real world!"

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Meanwhile, back at the ranch...
A glimpse into the life of this cancer caregiver
Click here to see the "cast of characters"\

Lily did it again.  This time she brought a chipmunk into the house. I was away and Chris saw it running frantically back and forth through the bedroom!  She opened the screen door that leads from the bedroom to the deck and went about her business in the house, hoping it would find its way outside.

The problem with this strategy was that she didn't know if it actually made it outside before she closed the screen.  We figured it was either outside where it is supposed to be, or it was hiding behind the bed leaving little, uh, "reminders" that it was there.  Just in case though, we set a live trap for it.

Two days later there was still nothing in the trap, so we figure that it did indeed make it out through the screen door while it was open.

It's amazing that Lily was able to even catch it in the first place.  Chipmunks are as fast as lightening, Lily only has one good eye (cataract in the other), short stubby legs, and a bell on her collar!

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Use our articles in your printed or electronic publications

Cancer for Two: An Inspiring True Story for Cancer Patients and Their Partners

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Our Mission:

Our mission is to reduce stress and restore hope for cancer patients and their families. 

We do this by sharing our unique perspective in order to:

  • bring a new sense of empowerment to patients and caregivers

  • bring a new level of understanding and renewed sense of purpose to their entire support system of medical professionals, friends, family, and support organizations.

  • Oh... and by laughing, too! 

Caring and Coping is a no-cost component of The Patient/Partner Project.

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